In July 2012, it will mark the 1 year anniversary of Lacey being diagnosed with Stargardts Disease. Since then, we have raised over $15,000 for research between 3 teams. (PA, NV, IN) The support has been amazing and continues to be strong when one of us have a bad day. She has learned braille at school, received a CCTV for her desk, and we are sooo close to her IPAD3 so she can finally read her JunieB books in large print. My family also bought a TV/computer for her room so that she didn't have to stand in front of the TV to see her movies. I am grateful that God gave me Lacey as my daughter. I know she is the reason why I AM where and who I AM. Change is good, and that I am doing.
This weekend we will be driving to Indiana to walk with some of my high school friends. Yes, I went to Oregon Davis High School in Hamlet INdiana and it was a very very small school. I graduated with 50 in my class. I spent 9/10 months in Indiana and 2/3 months in Las Vegas. Two very different places, two very different kinds of people. Indiana will always have special place in my heart and though I am not in that small community anymore, I will always have their "back" in anyway I can. It was a huge chapter of my life for 13 years. One of my favorite childhood friends named Andrea, AKA MONkEY, was going to be walking with my family and I this Saturday but due to her son Caleb being diagnosed with Leukemia just 2 weeks ago, she will not be there. Andrea's situation really really affected me as it did her whole community. I still feel the lump in my throat every time I think about it. Her support system is incredibly strong in numbers and strength and I know that she will never be alone in this horrific situation and THAT makes that big lump easier to swallow. Now, I am traveling to Indiana for my daughter, but also for Mr. Caleb Hoppe. Even though I think about you through-out the day, it will double every mile I am in the state.
To be continued.
